Welcome to my website.
Let me give you a quick rundown of my story. My entire life I have always been a part of sports. I love being active and being outside. Some of my favorite things are playing basketball, running road races, and camping/floating a river.
Running has been a part of my life for as long as I can remember. I ran a 5K race in third grade and completed a half marathon in junior high. I even ran in college when I was offered a scholarship. While running cross country for Trinity International University, I suffered two fractures to my left leg. Little did I know that what seemed like a busy, and sometimes stressful, time during college was just the calm before the storm.
Shortly after the last fracture I realized something was seriously wrong when simply putting pants or socks, or just the feel of the wind, would cause agonizing pain. I was diagnosed with Complex Regional Pain Syndrome, or CRPS, in 2018 and would begin my journey of trying to manage the “suicide disease.” That journey has been long and filled with setbacks.
CRPS is rather uncommon. The causes and treatment aren’t clearly understood. I’ve tried many prescription drugs, 20 spinal nerve block injections, physical therapy, and ketamine. Some of these actually made symptoms worse. After my last spinal block in early 2019, I developed constant tremors in my leg that I still have today. Sometimes people think I have nervous energy because my leg shakes constantly, but it’s not something I can control.
Just as the pain in my leg began to get better, the CRPS spread from my leg to my back and eventually to my stomach. The symptoms gradually got worse and I was unable to eat or drink without intense pain and vomiting. GI issues are a common problem with CRPS patients. I was diagnosed with gastroparesis earlier this year after a lengthy hospitalization and, I’m now on a nasal feeding tube that bypasses my stomach and goes straight to my small intestines. I’ve had countless issues with the tube, but it has allowed me to gain a little of my weight back.
I attend a clinic in Fayetteville, AR five days a week. I’ve witnessed a number of people with symptoms as bad as mine, and sometimes worse, walk out of that clinic with little or no pain. I have faith I will join the others, who have gone before me, with a spring in my step to start living life again. This is why I FIGHT CRPS.
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